Where is @Red_Rooster?
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I used to get very itchy skin every winter. Upping the humidifier made all the difference.
I realize your wife has a far, far worse condition than that. But maybe higher humidity will ease her condition, if only a little.
But you may have already tried that.
Sometimes when someone suggests you try something you’ve already tried, or when their suggestion underestimates your wife’s condition by a factor of a google, you just want to scream, “You just don’t understand!” But be comforted in this: they care and mean well.
May God lead you to someone who knows how to take away, or at least lessen her pain.
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@bskeet I could email HEM if you guys like. I want to be respectful of what people decide to do. I’m not sure the solution skeet, if a reengagement mass mailing would be intrusive.
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HEM blew his gasket, was posting nothing but negative crap and finally just went away to hopefully get his head back on straight. I missed the HEM from several years ago, but not the last 18 months. I’m hoping his time away has rejuvenated him and allowed him to see some positives, since he doesn’t have to mercilessly defend his negative position.
Whatever the case I hope he’s found peace with himself.
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@approxinfinity Do it! Tell him how much we miss his missives. He is the poster I remember fondly as my first contentious opponent on the old LJW site. I never could best him in regards to hoops knowledge, but often enjoyed stirring his input. He appeared not to give a whit whether fellow posters liked him or not; but the guy injected really fine opinions and factual analysis almost daily during past seasons. This site will not be the same without him. Gotta track him down, resurrect his input. I really really hope he is above ground and well, perhaps just too disgruntled to engage until this current squad settles into steady winning ways.
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@Red.Rooster Take care our friend. We sometimes forget that life happens to all of us that takes precedence.
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@approxinfinity I’ve been hitting him up on another platform. Thought he responded he’d be back, but not sure.
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I can see where this is going… the serenity dogs don’t work so they try to vote in more lax pot laws in Lawrence… essentially decriminalizing small quantities in and around Lawrence.
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@globaljaybird
I appreciated your post.
Let’s add “Kansas Jayhawk fans” as an American “WE the People” group. And we are of all races, genders, religions, and whatever other title people want to throw out there.
I don’t know what I would do without my Kansas fix… from following our teams to enjoying our fans.
I like this thread. It is a great thing when us members seek out our lost brothers and sisters. Several from this site came to my rescue early in this calendar year when I was battling an illness. I can’t express how much that helped me fight back to good health again! I can’t express enough thanks to everyone in here for showing concern.
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@drgnslayr it’s easy to do w/posters like you and red rooster!
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Thanks, Crimson! You are FIRST CLASS all the way!
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@drgnslayr I like this thread too. The big picture shows up unexpected, startling, like a mural on the ceiling when you finally look up.
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For much of my life, I lived and died with the Royals, Chiefs, and Jayhawks. I followed them like a tiger on his last hunt. Intently. I couldn’t get enough content or info on them. Before the internet you would always see me caring the sports section of the KC Star, or a magazine. I remember hoping and praying that my teams would make the cover page.
Like any person or fanatic with any addiction. I lived my days according to my teams. Their success or lack there of, impacted my day to day reaction to the world. Then I realized what an ass I was being. Now don’t get me wrong. I still have bouts or obsessions with my team. Yet I’ve learned to change the channel. In this as crazy as it seems I learned to appreciate the sports and other teams even more.
With the great advancements of social media. Average joe’s like you and I can become remembered by those that read the posts and comments that are posted. @HighEliteMajor is one of those rare cats that when he posts everybody stops and reads. @Red_Rooster is one the those one in million persons. rarely posting yet notice when he’s gone.
These open forums and the plethora of social outlets create Kings, mass followings, and yes even black balling all apply. @highElitemajor and @Red.Rooster are I would assume average people like everybody else in life. Trying to make sense of life, and enjoy what they can. Yet in here they are icons. Everything they post or do is dissected to the point of ridicules.
Trying to be objective here. Last years conversations produced more hurt feelings, sarcasm, and some cases all out war than years past combined. I’m sure this wasn’t the goal of he makers of this site. I’m pretty sure this site was created for Jayhawk fans a like could sit down behind their monitors and pound out thoughts and feelings, to share in the success of KU Basketball. Not to be mocked and ridiculed if something they posted was out of line of the general thinking.
@HighEliteMajor once said if all agreed on the substance what is the point of the topic. Something to think about.
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If you guys already reached out to him on twitter I’ll stay out of it @Bwag @REHawk. I agree with @dylans that things got pretty contentious at times in a bad way, and if HEM has decided to avoid our board thus far because he doesn’t need that stress then good on him. I miss the insightful analysis that his threads often sparked, but also things have been so agreeable recently. And that’s really nice. Hope he’s enjoying this year’s hawks.
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@Red.Rooster My (hospital worker) wife says she has seen people with undiagnosed liver diseases have uncontrollable itching. I know it can also be a side effect of diabetes, but I assume ordinary blood tests would have shown that.
I did a couple hours of research today trying to ferret something out that you might not have considered. It is depressingly astounding how many people on the Internet report this ailment and state they have not yet found a solution.
Some suggestions synthesized from this reading that your doctors might have already suggested, but you never know:
First, think back to one month to six weeks before it started. Any changes in a) diet; b) soap or laundry detergent (a change to Borax once caused me to erupt like crazy, now we use unscented All, a lifesaver); c) water chemistry, esp water softener if on a well (or any chance of chemical pollution) or home filtration, or bottled beverage intake; d) fabrics worn or bed linens or towels; e) pesticides inside or outside your home; f) vitamins or other medications; g) pets or pet behavior, even fleas or use of a flea collar; or h) a/c or furnace filters or buildup of dust anywhere in the house or car? Finally, any change in the temperature you keep at home?
Second, I assume you have considered scabies and or bed bugs?
Third, these things are often related to allergies or auto-immune issues. Sometimes people respond to a mild allergy or itchiness by taking antihistamines such Benadry, but those actually work by suppressing your body’s immune system, and a side effect can be to dry out your tissues including the skin. Steroid/cortison use can sometimes relieve the itching, but it might conversely worsen it.
Fourth, does your wife’s condition make her feel hot or burning, or cause unexplained sweating? You might see if lowering your house temperature 3 or 4 degrees brings some relief, or even more at night. Several people have reported that this made a difference, and I saw some speculation that people can develop allergies to their own sweating.
Fifth, check out any local businesses or industrial plants that might be nearby (perhaps a local environmental services agency or group) to see if any have been reported for releasing any chemicals, or if other people have also reported similar unexplained problems. You never know.
Anyway, these are just some ideas that cropped up. My heart goes out to both of you. It could be something external, but if not, I hope you have a chance to see a good neurologist if a dermatologist cannot find the answer. Liver issues would involved a hepatologist. Make any doctor you consult try to find an answer. Consider a research hospital if necessary.
Good luck. As you know, I am not a doctor, but I believe sometimes collective knowledge sharing among laymen can help doctors find some answers.
Edit: my parenthetical (letter bee) in the list above created an unintentional sunglasses emoji. Sorry about that.
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@mayjay I will turn to u for medical problems, nice of you
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@Crimsonorblue22 I am still trying to edit out unintended emojis. Turn to me for medical advice? I will probably just give you lists of questions…
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Of all the above, I worry most about @JRyman because he said he was going through a hellish bout of disease. Hope you know we think about you even if you are too sick to bang a keyboard.
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One more thing, @Red.Rooster, you’d have made a fine President. I would have been happy to follow your leadership.
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Posters: May we please let other poster have their say without taking offense or feeling the need to correct or ridicule someone else. I participate here just for fun and to gain insight and knowledge. Whenever I encounter a snarky post or one that is over the top, I just move on. Everyone is entitled to have a say here, right; I don’t have any right to dictate what’s being said. On the other KU site, whenever I read a post from a known downer, I just skip it. It’s easy and it allows me to read the posts that make this fun. Ok, lecture over. Sorry for taking the soap box this evening after such a great football victory. I wish I could follow the crazies with the goal post to Potter’s Lake. RCJH
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@Red.Rooster God bless and godspeed.
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Ah-hah!
@Red.Rooster is with us! I know where to look… in the “Likes.”
I hope you are well and happy, our friend!
What? There is another KU site?
All puns aside… good post, and we can never repeat that enough on here.
Proper etiquette is a discipline requiring constant effort.
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@jaybate-1.0 yes, to many hits and accidents. I bet he checks in.
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@mayjay its simply awesome that you dedicated time to research such a topic that could possibly bring the wife of @Red.Rooster some comfort. Nice going.
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@YellowBeak Thank you. Something I have always found interesting to do since I usually discover something that might be useful to me, too, or lots of other people in the process. I just figure most people need to be willing to keep pressing for answers. I love and respect doctors, but they sometimes don’t have the time for in-depth research for every case like Dr. House. So I figure if 200 people, or 2,000 or 20,000, share the information they have gotten from their doctors, it can help general enlightenment.
The danger (and it is yuge!) is when people read something, say, “That sounds like me!”, and stop looking into it further because some idiot somewhere “cured” himself of earaches by chopping parsley and smashing it into his navel or something. The Internet has lots of info, but lots of BS, too. Being a (retired) judge helps me be skeptical and willing to sift through the bull in search of useful info.
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@mayjay … THANK YOU, Thank You, thank you! I appreciate your comments. Several of these we already considered … but a couple of them need some effort on our (wife and I) to chase to a conclusion. We already have an appointment with a Neurologist that is pending. They seem to be extremely busy and/or booked up and it is hard to get an early appointment. My wife is trying to tolerate this ordeal. She has cut the toes out of my “men’s socks” and now wears them over her arms and she is also wearing soft / cloth gloves to help her to NOT continue scratching or “tearing up her skin.” i.e. she has an estimated 300 - 400 open wounds. On a personal note, WE have spent much time on our knees in asking our Good Lord to intervene in this situation.
Thanks again Mayjay … All the best for you and your family !! This was very thoughtful and I am humbled by your comments.
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@Red.Rooster I am always humbled by what so many people go through while keeping their grace and equillibrium. I will be holding you in my thoughts and prayers as well.
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@Red.Rooster My prayers go out to you and your wife. It’s one thing to suffer from something, but it’s another to not know what the cause or cure is. One thing I do know - it’s nothing that the Good Lord can’t handle. Peace and comfort to you both until He works it out.
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@mayjay said:
@Red.Rooster I am always humbled by what so many people go through while keeping their grace and equillibrium. I will be holding you in my thoughts and prayers as well.
RR’s story really helped put something in perspective for me.
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@approxinfinity I think it could be considered intrusive if it isn’t positioned right.
I can’t recall, but I don’t think there is any T&C when someone signs up here. If so, then members haven’t given permission to be contacted… and they haven’t said no either… It’s kind of gray.
It would take some work, but maybe going forward there could be an option that a user could check to say “Message me occasionally with updates about this community…” or something like that.
At the same time, it might be nice to give assurance that we will not sell or give away our membership information (assuming you agree ).
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@bskeet Of course, I wont sell anyone’s information. That’s a good point about the T and C. There may be a plugin for the board or features on the new versions for subscribing to mailings.
As an aside, I stalled out on moving us to the new version of the board because the upgrade path just didn’t work. I was considering moving us to the hosted version of NodeBB, which would mean they would maintain upgrading the board for us, and maybe doing a Kickstarter to sustainably fund us which would be pretty nominal, but my ideas on this are half baked at this point. Right now I’m enjoying being just talking about sports and not worrying about it until I have some time to dig in.
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@approxinfinity said:
Right now I’m enjoying being just talking about sports and not worrying about it until I have some time to dig in.
Amen!
