I'm Back
-
Get it out brother
-
They ran some more scans this morning and are going to see if the surgery isn’t needed. It responded better than expected. They are going to see if he can drink liquids without getting sick.
-
Keep us posted
-
Things are very not great atm
-
Sorry to hear that. Anything you want to talk about?
-
-
@BShark sad to hear. We are here for it if you need to talk about it.
-
Things are very not great atm
Hope things turn for the better. We are here if you need to share/vent.
-
hang in there. Been worrying about you. 
️
-
I need to vent/cool off right now. So they prescribed him meds as he left. One of the meds for pain…right on the FUCKING LABEL “do not take if you have or are recovering from a bowel blockage or narrowing of the intestines”. Nothing was said by the doctor about this when going over the meds before he was discharged. First few days back home he was miserable until we figured out he needed to stop taking that. Last couple days much better so far…
-
@BShark WOW. Well, I’m glad things are going better.
-
@BShark the doctor AND the pharmacist should have caught that. So frustrating.
-
My partner’s oncologist is great and we love her. But at one point she shared how many patients she’d seen that day and the number was shocking. I don’t know how any person, no matter how smart, compassionate, organized and meticulous they may be, can handle the volume of patients most of these doctors see with any kind of real understanding of a patients full story.
Luckily my partner is so personable that everyone loves her immediately and she is purposeful about building those relationships so that she gets the best care she can. She learns more about her phlebotomist than I do about people I’ve worked with for years, lol. But the system is so broken.
-
@benshawks08 Definitely a major takeaway for me has been how overworked people in this sector are.
-
@BShark I vividly remember my hives from my prescription for an antibiotic after oral surgery that turned out to be amoxicillin despite my penicillin allergy written on the dentist’s Rx form itself. Should have been Azithromycin. Never again will I blindly accept a prescription!
-
-
@BShark I’d make sure the dr knows what happened!
-
@BShark Wishing the best for you and your family
-
@BShark what was the medicine? if the medicine was a pain pill/narcotic, it is to help lessen his pain with a potential for constipation, which could cause another blockage. He should have been given something along with it to prevent the constipation side effect. If he was receiving the pain medicine while hospitalized and was having normal BM’s once the bowels started working again, then the likelihood of a blockage is low. You should have been told about that potential side effect though before being discharged. Unfortunately, discharge instructions, too often, are not as thorough as they should be. This occurs because of staffing shortages, staff apathy, and the patient wanting to get out of the hospital hours, if not days, before it occurs.
-
@BShark what was the medicine? if the medicine was a pain pill/narcotic, it is to help lessen his pain with a potential for constipation, which could cause another blockage. He should have been given something along with it to prevent the constipation side effect. If he was receiving the pain medicine while hospitalized and was having normal BM’s once the bowels started working again, then the likelihood of a blockage is low. You should have been told about that potential side effect though before being discharged. Unfortunately, discharge instructions, too often, are not as thorough as they should be. This occurs because of staffing shortages, staff apathy, and the patient wanting to get out of the hospital hours, if not days, before it occurs.
He did not receive the medicine until after discharge as far as I know. Though I will say I don’t know exactly what they were giving him while he was in there. I’m doing what I can but I can only stand being in and around hospitals so often, that I wasn’t there a ton during those 10 days. I did visit several times and talk to the nurses etc… This is stage 4 colon cancer so normal bms don’t really exist anymore.
-
Back on the chemo grind next week
-
Good luck man.
-
@benshawks08 not looking great lately. He doesn’t want to eat
-
Don’t give up hope! He needs you. I know it’s hard. 🫶 what’s the dr say? I’m so sorry!
-
Chemo is tuff.
-
-
@Crimsonorblue22 said in I'm Back:
what’s the dr say? I’m so sorry!
Not really any answers at this point. Is what it is, just have to try to keep living. Last few days mostly better again but his weight is down a lot since the blockage. Needs to try and get it up but eating potentially makes him feel much worse so he often does not want to.
-
@BShark Every case is different, and listen to the doctors, but your “cure is as bad as the disease” comment made me remember one of my uncles. He suffered with prostrate cancer and went through all the procedures - chemo, radiation, etc. When he was on death’s doorstep he said no more “treatment”. He lived another relatively good 12 years.
If you’re inclined, you’re already praying. If not, a bunch of us are praying for you, for your brother. Hang in there.
