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@approxinfinity said in I'm Back:
@BShark best outcome! Whew. Glad to hear.
Does seem like they are going to have to surgically remove it now. They were hoping it could go away naturally with help but it isn’t.
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@BShark ugh hope it isnt too intrusive, good luck.
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@approxinfinity They don’t think he will need a colostomy bag at least… Hopefully that proves true.
ETA: It really does help to just have a place to talk about this.
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@BShark i think lots of people have had digestive issues of various degrees of severity. Whatever happens i hope it settles down for him and it becomes predictable and manageable.
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@BShark your brother is lucky to have you. I’m sure he’s very grateful! As much as you all have been through, there are still some positives. You have options. Be very thankful that his issues are physical and not mental. Anyone in this country who is suffering from severe mental issues is absolutely screwed. My wife’s brother struggled with several severe mental problems for years. We tried, begged actually to get him help and every single institution, without fail, said “if you don’t have an extreme buttload of money, we don’t give a crap”. He finally ended his own struggles with a rope.
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@approxinfinity They don’t think he will need a colostomy bag at least… Hopefully that proves true.
ETA: It really does help to just have a place to talk about this.
I’ve never been a big support group kinda guy but have recently started attending one and man does it help to say things to people who really understand and care. Mine is super specific to care givers/partners of cancer patients who are also parents of young kids. Seems so hyper specific but with the power of the internet there is a community out there for everyone.
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@benshawks08 Talk, man. Talk. It helps.
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Get it out brother
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They ran some more scans this morning and are going to see if the surgery isn’t needed. It responded better than expected. They are going to see if he can drink liquids without getting sick.
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Keep us posted
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Things are very not great atm
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Sorry to hear that. Anything you want to talk about?
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@BShark sad to hear. We are here for it if you need to talk about it.
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Things are very not great atm
Hope things turn for the better. We are here if you need to share/vent.
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hang in there. Been worrying about you. 
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I need to vent/cool off right now. So they prescribed him meds as he left. One of the meds for pain…right on the FUCKING LABEL “do not take if you have or are recovering from a bowel blockage or narrowing of the intestines”. Nothing was said by the doctor about this when going over the meds before he was discharged. First few days back home he was miserable until we figured out he needed to stop taking that. Last couple days much better so far…
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@BShark WOW. Well, I’m glad things are going better.
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@BShark the doctor AND the pharmacist should have caught that. So frustrating.
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My partner’s oncologist is great and we love her. But at one point she shared how many patients she’d seen that day and the number was shocking. I don’t know how any person, no matter how smart, compassionate, organized and meticulous they may be, can handle the volume of patients most of these doctors see with any kind of real understanding of a patients full story.
Luckily my partner is so personable that everyone loves her immediately and she is purposeful about building those relationships so that she gets the best care she can. She learns more about her phlebotomist than I do about people I’ve worked with for years, lol. But the system is so broken.
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@benshawks08 Definitely a major takeaway for me has been how overworked people in this sector are.
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@BShark I vividly remember my hives from my prescription for an antibiotic after oral surgery that turned out to be amoxicillin despite my penicillin allergy written on the dentist’s Rx form itself. Should have been Azithromycin. Never again will I blindly accept a prescription!
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@BShark I’d make sure the dr knows what happened!
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@BShark Wishing the best for you and your family
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@BShark what was the medicine? if the medicine was a pain pill/narcotic, it is to help lessen his pain with a potential for constipation, which could cause another blockage. He should have been given something along with it to prevent the constipation side effect. If he was receiving the pain medicine while hospitalized and was having normal BM’s once the bowels started working again, then the likelihood of a blockage is low. You should have been told about that potential side effect though before being discharged. Unfortunately, discharge instructions, too often, are not as thorough as they should be. This occurs because of staffing shortages, staff apathy, and the patient wanting to get out of the hospital hours, if not days, before it occurs.
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@BShark what was the medicine? if the medicine was a pain pill/narcotic, it is to help lessen his pain with a potential for constipation, which could cause another blockage. He should have been given something along with it to prevent the constipation side effect. If he was receiving the pain medicine while hospitalized and was having normal BM’s once the bowels started working again, then the likelihood of a blockage is low. You should have been told about that potential side effect though before being discharged. Unfortunately, discharge instructions, too often, are not as thorough as they should be. This occurs because of staffing shortages, staff apathy, and the patient wanting to get out of the hospital hours, if not days, before it occurs.
He did not receive the medicine until after discharge as far as I know. Though I will say I don’t know exactly what they were giving him while he was in there. I’m doing what I can but I can only stand being in and around hospitals so often, that I wasn’t there a ton during those 10 days. I did visit several times and talk to the nurses etc… This is stage 4 colon cancer so normal bms don’t really exist anymore.
